Wednesday, June 16, 2010

Appointments for the day

There are some very tired boys at the Hite house tonight. We left our house at 10:00 am to start our day of appointments, okay only two but they lasted all day. We left the Children's parking deck at 4:00 this afternoon. We had to go downtown to pick up Nathan and Owen's ABR results, head to Brookwood for therapy at 11:00 and then back downtown to Children's for a 1:00 appointment. I packed Preston and I a lunch, so we ate in the car while driving between hospitals. I have to say I am SO THANKFUL Preston is able to go with me to all these appointments right now. I honestly don't know how it would make it to the door with both little guys, oxygen tank, 2 monitors and a diaper bag. I will say driving between Brookwood and Children's with both little guys in the car, having them with us at appointments is so much better than driving between hospitals to visit them in NICU. I will take a day of appointments any day.

Owen has his weekly appointment with Sally. He keeps his left hand in a fist a good bit. She worked on getting his hand loose. We really did notice a difference in his hand today. She showed us a few more stretches to do with him because his left side is feeling a little tight. We are so grateful or all the specialist who see the boys and know how to find and correct things with the boys that we did not even know existed.

We had our appointment at the ENT practice. The doctor was great and we learned some but still know there is a lot ahead of us and a lot we don't know, because we just don't know the questions to ask. No fluid on Owen's ears and probably no fluid on Nathan's. The doctor thinks he has more of a white substance. He worked hard on cleaning out both boys ears but was not able to get everything out of Nathan's right ear. Let's just say, neither boy was excited with what he was doing. The boys will continue with their scheduled ABR at the Sparks clinic at the end of the month, but are also getting appointments scheduled at the HEAR Center. After this next test at Sparks clinic, they will then transfer to the HEAR center. The HEAR Center is where Owen will get his hearing aids and therapy and Nathan will get all his cochlear implant therapy, mapping of the implant, etc. Nathan is also getting an appointment scheduled with Dr. Wooly, who does all the cochlear implant surgeries.

We looked at our calendar and are so excited. No appointments until next Wednesday!!!

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